If anyone needs a lesson on how to be tough they need to be taught by the one and only LIAM KENT SUGAR. He did very well today for someone only being 24 hours post op. They were pleased that he was able to be weaned off some of his meds that he came back from OR with. He has been stable. They did d/c his paralytic this morning. But on high doses of morphine and ativan. Trying to keep him heavily sedated. He has been waking up. Which it is good in a way so they know he is still neurologically capable, but with his chest being open he cannot be like himself at all. Today i got to experience him try to wake but he cried so hard, so hard like he was in extreme pain. My heart broke and i couldn't do anything to try to console him or make it go away. That is hard for me. That is not something they want because of his chest being open and so newly out of surgery. So thank goodness for our amazing nurse Wendy she was able to give him meds immediately to settle him out. It feels like we have started from the beginning but he is stronger and more used to these meds. He is such a fighter. His biggest thing now is to urinate. He has not been putting out enough urine to get his fluid off. He has a lot of edema again and we all remember that from precious surgeries. Nemo loves his water!! Just keep swimming!!
P.S. change of subject. I just need to show all of you my nephew Bryson He is growing up so fast and he is gorgeous. I pray for the day to come that Liam and Bryson can play together and be besties!!
I found your blog randomly the other day and have read all of your posts. God bless you and your family and all that you have gone through. I have been sending ALL of my prayers to Liam and your family. He is such a doll face!!! Selfishly, please keep updating your blog so we can all continue our prayers and know Liam is getting better. Lots of love from Minnesota, a former Buckeye:)
ReplyDeleteWell Angie...it sounds like Liam is moving forward...its good that he is waking from the meds...we have been saying is name all day so that the lord hears us...the kids asked me tonight how Liam is doing and I told them that he is fighting...keep giving his kisses and make sure you tell him as much as possible how much you love him...don't forget to tell Chris to how much you love him...well good night and god bless
ReplyDeleteThank you Lord. Angie and Chris you ate seeing one miracle after another. God answers prayers. I have to check several times a day to se how Liams progress is. You all get a good nights sleep. Thank you for sharing your story so that we may all continue to be a part of it through prayer.
ReplyDeletePraying for your family. Thank you for the updates. God bless you and keep you.
ReplyDeletePraying for Liam. Such a strong fighter - he will have stories to tell one day about how brave he was! My mother is at UM Hospital today having a heart procedure. I have told her about little Liam - his strength through all of this is giving her strength. We will continue to pray for Liam as he heals from the surgery. May God grant you grace and peace.
ReplyDeleteIn his short life so far, Liam has taught many people so many things. I believe Liam was sent here from God with a very special purpose. Mom, you are also an inspiration to us all. Keep fighting and we will keep praying!
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