5 weeks old

5 weeks already can you believe it! Well I know all my blog family is dying to hear about today's echocardiogram. Lets just say GoD is GOOD!! His pulmonary vein gradient is the same. No change, no increase. All looks good on echo. That means for precious Liam that he does not have to go back in for open heart surgery. :) But you all know Liam needs to keep things interesting and keep us on our toes. Wednesday he will be having the thoracic duct ligation. He will be heading to the operating room where they will make incisions on his sides and suture the thoracic duct. The thoracic duct is the size of a hair and what most likely happened during one of his previous surgeries it was cut. Unfortunately there is no way to tell if this was done during the procedure to fix it then. Its a waiting game to see if the chylous drainage forms. This will hopefully stop the chest tube drainage. It is not always successful but we are going to pray and hope for Liam it is. There is hope and promise behind it because we heard a previous story about a little girl that was stuck at this point like Liam. Cannot get off the vent and had significant drainage output. She had this procedure and she went home shortly after. This is what we pray for. Earlier today they put Liam in a prone position (which is laying him on his belly) to help with his pneumothorax ( collapsed lung) It was so amazing. I got to do skin to skin with his back and play with his brown hair. We had Lots of visitors today. My mom was still here along with my Aunt Becky, who was so generous to give Chris and I massages last night and to give Reike to Liam today. Great grandma and great grandpa Curtis were here as well. We loved having them here. But it's always hard to say goodbye. The giving library stopped by today and we got a new book to read. It was a Elmo book. Liam loved it, wide eyed and looked at all the pages. He is a miracle. We have met so many wonderful parents of cardiac patients since we have been here. Please pray for them. So much heartache and sadness. Of course there is joy and hope with others! I received a reminder from a dear friend today when I needed it most. Faith is not believing God can, it's knowing that he will.