Believing!!

Here is the latest..hang in there because its a lot to process. Trust me! So all the doctors (the best of the best) went over all of Liam's tests etc. Liam was born with a very complex heart. Not one heart is similar. He has a single ventricle heart. A normal heart has two ventricles. We like to call his smaller nonfunctional ventricle- his gimpy fin :) like Nemo's...
Since he was born, his gimpy fin has grown in size. Crazy right....So they were questioning if they could make him a double ventricle. With the complexity of his heart and how complex that surgery would be they do not know if that is workable. That would be so wonderful for him and his prognosis but nothing is simple with Liam Sugar aka NEMO....
So his heart surgeon feels like his pulmonary veins are fixable, which is good news and our first task at hand. They are not chronically diseasing outward toward his lungs. They seem to stay pretty dilated. They are stenotic right where the confluence of his heart is. (Where they meet at the aorta) Which she is happy with. Today she told us that she feels a little hopeful if she could go and repair them. The future for Liam is still gray but if she is a go then so are we. She would never attempt another surgery with him if she didn't feel like an outcome was possible. I asked her where we would go from here, her reply is my motto, one day at a time. Future surgeries are still questionable- would it mean heart transplant, or his fontans, or this far-fetched double ventricle.. Such a complex heart for a little guy.
We never know what tomorrow will bring for our superhero but he is a hell of a fighter and if he is going to continue to fight for his life then so are we. No going back now. He is our life and we wouldn't trade it for the world.
His surgery is scheduled for Wednesday . Unfortunately This means another open heart surgery, another round of going on bypass, more fluid etc... She said we are definitely taking a step back but it is way more positive then the alternative. Nemo ROCKS!!