Day 22

I am sorry to all of my followers that I did not post this last night! Yesterday was one of those days were shear emotional and physical exhaustion set in and I did not have enough energy to blog my feelings. Yesterday as a hole Liam had a great day! Weight is significantly down. Kidney functions look great! Weaned on more sedation.. Weaned on ventilator. Off Bp meds. Weaned on amiodarone. He was awake most of the day. He has become so alert and interactive. That pleases the physicians. They do not mind him being awake as long as he seems comfortable. Chris and I thought it was going to be a great day. Until we got his echo report! They decided to order one to check his heart pressures since his heart cath the day before showed weakness within the heart! The 2-d echo measured the pressure of his pulmonary vein to be elevated! For those you who have been following Liam's story you know that the pulmonary vein is what was obstructed and what needed to be surgically fixed immediately after birth for survival. Then they went in for his second open heart for increased pressures within the vein and found a blood clot had formed around his heart line! So hearing pressure has increased within the vein is disconcerning! Chris and I both felt broken after hearing this! The cardiac fellow said it was not there last week and it could be from the healing process or scarring around the site that was fixed! Unfortunately we got this report late in the day so Liam's heart surgeon was no longer in! Not knowing what was to be expected as we got here today but the fellow said that they will repeat his echo on friday and see what the pressures look like! He does not seem to be having any issues with the pressure increase, all of his vitals are perfect especially after he received some blood yesterday because his hemoglobin and hematocrit was low! Oh my Lord please let my little Liam get through this.... I am jumping to day 23 already with an update by Dr. Hirsch, she gave us hopeful news! One the weakness in the heart is most likely caused from his collapsed lung! It's all working very hard to bring blood back to the heart! Their goal is to continue working on his lung with vibrations to help rebuild it! Second in regards to the pulmonary vein she is not planning to just jump right back in his chest! Since all pressures have been fine except for the time with the blood clot she feels like he could have another one! She doesn't think it's structural from the initial surgery! So they are going to start him on heparin which is a blood thinner in hopes his pressures release! Plus she said the pressure of 5 is not life-threatening and wants to see how things go over the weekend! When they went in for his second surgery it was 8... So at this point all his hopeful!! She still believes that he is progressing and is not concerned! Please pray for Liam in hopes all is well and no need for additional surgeries. My little man cannot endure anymore!! I received a message from a friend with a bible verse that I enjoyed! Exodus 14:14; The Lord will fight for you; you need only be still!! Thank you for sharing this!! Xoxoxo