4 weeks

Our superhero is 4 weeks old today!!! Time has flown by! We never thought we would still be here in Ann Arbor but our little boy is not ready to leave just yet! Today was a crazy,busy day! His echo did show a higher gradient from his previous echo! Not what we wanted to hear! His surgeon said it his high enough now where some intervention is needed! So he was sent for a cardiac MRI today for more extensive tests! There is a discreet area showing some stenosis. So tomorrow morning he will be sent down to have another heart cath and while they are there they will do a balloon angioplasty! Where they will expand a balloon into the pulmonary vein to see if it changes anything. She did say that we will know immediately if it works! The bad thing is we don't know how long it will last! Days, months, forever.. Will need to be followed. If it does not work she will have to go back in his chest and try to repair it! If it has to be the alternative she wants to hold out to do so since his lungs are in very poor condition. His left is worse then the right but she said if he was to have another surgery she could make them both worse!! He needs to get the fluid off his lungs!! Another hard day, another day full of tears and heart ache! Tomorrow will be another long and hard day for us!! This journey is so hard, my little boy is stronger then I could have ever imagined but he needs to catch a break! Way more complications then what was anticipated. We need a prayer chain!! Xoxo