Wednesday, September 12, 2012

16 days old

Liam was a good boy today! His heart continues to go in and out of rhythm but the physicians have been satisfied with his progress today! They have weaned him down significantly on his vent! Back on his feeding! He is still slowly losing his water weight with the dialysis drain! The physicians goal is to continue with the weight loss and working towards getting him off the vent! Liam has a full blown personality! Today his nurse was suctioning his breathing tube today ( which he hates) and he shot her the dirtiest look he could muster! We all got a very big laugh from it! I cannot wait to see him off of all these tubes so I can experience everything about him! From his facial features to his expressions! His iv in his leg was leaking last night and this morning. The problem with this is that is where all of his meds are pushed! So they had to remove the old one and put a new one in! The only thing about changing it out they decided to put one in his arm too! So now he has a cast on his arm with an iv! Poor baby... He has only one appendage left without a needle in it! His left arm is free for us to hold and kiss, he loves to have his hands by his face when he sleeps! In all of my ultrasound pictures his hands were in the same position up by his face. It is so sweet! He still does it now. But of course the right one with the cast is to heavy to lift and he is annoyed! Liam had a musical therapist stop by today and play lullabys with a guitar! It was so soothing and relaxing. I think i enjoyed it more then he did. My favorite part was when he played amazing grace! My cousin Katie entered my thoughts and I knew she was here watching over us! A calmness washed over me!! Overall i would say its a better day! Thank you all for your continued prayers! The power of prayer does work!

1 comment:

  1. I love reading how well he is doing through Amy's repost of your blog. He seems to be doing amazingly well. I'm sure it's trying on you as parents to one see him like this and two just the roller coaster of days. Hang in there and know there are prayers and thoughts coming to you all from all over the states (and maybe further). Keep up your strength as well as you will need it for this long, but wonderful journey ahead of you. Continued Luck and Prayers and God Bless You ALL.

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