He has changed my life in so many ways and made me a better person. I met with his surgeon and the attending along with some great nurses and our social worker today to go over Liam's care. Liam is on a downward slide and if he continues to need additional support with blood pressure etc they feel like it is not fair to him to do this. His little body has been through so much. Everybody has said Liam will tell us when he cannot do anymore and my fear is that he is telling us. Chris and I have made a promise to never do harm to our little boy and always do what's best for him. The doctors all say we will never need to make decisions on our own, these people are amazing and I truly love them all whole heartedly.
Another echo was performed today and his pulmonary veins that were fixed in his last open heart surgery look fine but they found a blood clot on his broviac. This is a line that goes into his heart for access for meds!/blood. They started him on heparin to see how this all works out but it continues to be one thing after another for him. My mom has been here for me since Chris left, she has been my backbone through all of this. Aunt Angie came up to visit with us for a few days. She always bring positive energy to us when we need it most.
Prayers for my son, for strength, courage, and peace. Xoxo
So glad to see Liam in your arms, where he should be. I'm praying you and your little man. May God give you the wisdom, strength, and comfort that you need during this time. I continue to pray for the Lord's healing hand upon your little superhero. We love Liam!
ReplyDeleteangie u r the greatest gift OUR GOD has given Liam i think of him all day some days give ur mom n dad our love same to u n chris god bless u angel lauri smith moss
ReplyDeleteYou are such a beautiful family. Father God,please heal Liams little body. You are the one true Healer. Please don't let this little man feel no pain. Give him the rest he needs to fight and he knows you are right there by his side. Lord give this family the strength the need for every day. Precious Lord wrap your arms around them all. We all know that through your precious son is the only way. Thank You for every day. In Jesus name I pray Amen. Angie there are so many people that have fallen in love with your little Superhero. I admire the strength that you have,and I'm so glad you've chosen to let my husband and myself and so many others see this miracle. Always remember God is with us,he will never leave or forsake us. Sometimes we may feel like we are all alone. Just get in a quiet place and talk to God and in the stillness listen for his voice, it is always there. Sleep well. Waiting to hear that better news tomorrow. Goodnight
ReplyDeleteThank you for sharing Liam with us. I will continues to pray that you all find strength and peace. May God blesd and keep you all.
ReplyDeleteYou are just about the most amazing mom I've ever heard of!! You, Chris, and Liam are an inspiration to us all. Praying God just wraps you in his arms and brings you overwhelming peace during this time.
ReplyDeleteI don't know how you are able to put him down in his bed. Seeing that smile on your face holding him is love in its purest form.
ReplyDeleteYou are all amazing...Liam has fought so hard and I pray he can fight still even now through this difficulty time...if he can get through this...we all might have the privilege of seeing who this amazing child could inspire throughout his life! He is so special and I pray more than I ever have that he can get through this. I love all of you and I never met you!
ReplyDeleteI am replying to my own post because what I wrote cannot express how I feel ...I just wanted you to know that...the feeling in my heart of hope is so great that words cannot express it...it is just unexplainable...only God knows and from deep in my heart I am hoping and praying without the the words to fully express what my heart feels for Liam and all of you!! I keep looking for a newer post because I am so hoping for some good news...I know I have to wait more than five minutes for one :) I am so impatient for some good news for Liam:)
DeleteI'll say a prayer for Liam and your family. I live down the street from you and am friends with Jesse and Julie. I keep coming across your posts through Julie and I believe strongly in the power of prayer! Stay strong!
ReplyDeleteWhen I saw this today, I felt compelled to share. Your family is an inspiration. Your unwavering faith, the overwhelming love... There are not words enough in the english language to describe how much my heart goes out to you all.
ReplyDeleteI came across this poem and it seems fittting:
I Still Would Have Chosen You ~By Terri Banish
If before you were born, I could have gone to Heaven and saw all the beautiful souls, I still would have chosen you...
If God had told me, "This soul would one day need extra care and needs", I still would have chosen you.
If He had told me, "This soul may make your heart bleed", I still would have chosen you.
If He had told me, "This soul would make you question the depth of your faith", I still would have chosen you.
If He had told me, "This soul would make tears flow from your eyes that could fill a river", I still would have chosen you.
If He had told me, "This soul may one day make you witness overbearing suffering", I still would have chosen you.
If He had told me, "All that you know to be normal would drastically change", I still would have chosen you.
Of course, even though I would have chosen you, I know it was God who chose me for you.
That baby is beautiful and we all know that! He is coming home know matter what! I love you guys and you are in my heart forever and ever!
ReplyDeletelove always,Alyssa xoxo
Hi my little friend, I love this picture of you, Mom & Grandma... so much love and support. Liam, your Family has unwavering faith & has put your care in the hands of the Greatest Healer.. Our Lord & Savior. I am humbled & overwhelmed everytime I read about another obstacle that you have overcome... and still the sweetest smile & little love you are. Your Family has touched my heart... so young, yet the strongest most courageous people. We are all praying for your healing Liam... in fact my sister Mary Beth, and friends Chris, Linda & Felicia have now added you to their prayer list....I know God knows who Liam is !!!! Angie & Chris I have continued praying for you. I pray that you see & feel God's presence in your lives... and HE will never leave you... no matter what. God Continues to Bless you Love Karen
ReplyDeleteOh Angie I just don't have the words to express how I feel for that sweet baby Liam and you and Chris! I'll just continue to pray for all of you. I love the pic of you holding Liam!
ReplyDeleteGod Bless all of you!
Love.......Rosie (RoRo)