Wednesday, November 7, 2012

Day 73

Today was one of those days where the tears just pour over and they won't stop. His weight has significantly increased. It almost does not look like him. Its very hard to see him that way His wound vac dressing was changed today. They were very pleased with the way it was all healing. So that's good and his sedation and pain we believe is finally well controlled. Those are the positive that came out of today. The increase of his swelling is very bad making it harder for him to breath so they needed to increase his vent settings. Over the last few days his blood pressures have been low, they needed to start him back on epi again for his readings. I was very sad about that but they are hoping to wean it down quickly. But since they have him back on these meds he needs to have an arterial line put back in. This is to make sure he has a constant Bp reading in place and can be monitored more closely. Trying to find arteries they can use has been an issue for a very long time. Hoping that one can be successfully put in place for him. So if things couldn't get bad enough around 6:30 tonight he started having his arrhythmia's. Liam has not had any rhythm issues in over 2 months. He has been on constant amiodarone of 5 for so long with no issues. When he has his episodes it does not reflect on his Bp so much but it's very concerning that he is having these issues again. The last open heart and this infection has set him back a great deal.
The worst part of our day was saying goodbye to Chris. He had to go home and go back to work. I am so very proud of him for making such a hard decision. It was not easy seeing him leave and I know he felt the same. I love you Christopher! You have made me so proud and so happy to be your wife. Liam and Parker are both lucky to have you as their dad.
Days like today are emotionally and physically draining and all I can do is pray!

13 comments:

  1. My kids and I pray for Liam several times throughout the day. As we continue to do so, I will definitely be saying special prayers for both you and Chris. I can't imagine how hard it was to see Chris go home and to have to handle things on your own, and I can't imagine how hard it must be for Chris to be away from you and his little guy. You have a wonderful family, an amazing little man, and such a great testimony. I'm so thankful that Liam's wound is healing well. Baby steps. We'll keep praying for and loving on him (and you) from afar. May God bless you all.

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  2. I came across your blog posted by a friend on facebook. Your story is incredible, your son is incredible and you are AMAZING. I read just every blog and one thing stands out (amongst the obvious strength of your son and evidence of God and miracles) your perserverance and love as a mother is beyond inspiring. Many people in your shoes would crumble. You have not waivered. Your son is strong because of you (and your husband). You are super. SO much love and prayers your way. <3

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  3. Angie and Chris,my heart breaks for all of you that Chris has to go back to work. I can't imagine how either one of you feel. Heavenly Father, I come to you to ask that you wrap your loving arms around this family Lord. Somehow take the tears and turn them into smiles. Give Chris and Angie comfort and strength. Heal little Liam Lord so that his parents may take him home and they can be a family and to be together. In Jesus Name I pray Amen.

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  4. My kids and I pray for you all every day and every night. Liam is an amazing little boy and has captured the hearts of so many people including mine. AND you are truly amazing. Such an inspiration. Liam Is so lucky to have you.

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  5. Hi Liam so glad to hear that the wound vac is doing the job, and you are healing nicely. Be easy on Mommy today..no more surprises.. OK ? she is missing Daddy as I am sure you are too. I know it stinks that he has to go back to that awful 4 letter word... WORK UGH !!!! Hopefully Daddy has a job that is fulfilling & enjoyable. OK.. now for the good stuff.. I went to dinner tonight with 3 friends.. Mary Ann, Jeannie, & Debbie and they will be praying for you now too. They are Godly women !!! Angie & Chris we are keeping you in prayer too. I cannot imagine how hard this is for you. Angie & Chris I am continued to be amazed by your strength & faith. Even as Christians its hard for us, but know that God is holding you tenderly in the palm of HIS hand.. HE is the best friend ever !!! God Bless you with a restful night... your friend Karen

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  6. god bless u all angie ,chris, n liam we pray for u multiple times thru out the day . stay strong lil buddy u r a gift to more people than u will ever know

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  7. I went and lit a candle for you and Liam. I prayed and asked God to give Liam the strength to get through all that he has to endure. He is such a fighter! I think and pray for you and Liam everyday! He is such amazing little person already! He's Been through more than what some people go through in a lifetime. How could you not fall in love with Liam and his beautiful eyes? Everyday I wait and see how he is doing. Hoping for good news! God Bless you and Liam. God has a plan for Liam. Please stay strong. Never give up hope.

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  8. A friend posted on Facebook about Liam and I've read all your post! He sure is a strong little boy! I was walking my dog today and saw the letter S on the back of a hitch and it reminded me to pray for Liam! I'm glad to hear his wound is healing! You both are awesome parents! Keeping you in my prayers!

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  9. Angie, We are praying for Liam and my dear friends at Victory Chrsitian Center are all praying for Liam. We have kept them in the loop through your wonderful postings. We are praying for Chris today too, I am sure it ripped his heart out having to leave the 2 of you there. God loves when we remind Him of His promises he has given us and I remind Him of this daily when I am praying for He knows what is best for Liam and for us all.
    Ephesians 3:20 Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think.
    Love you Guys ! Todd & Polly

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  10. Angela Marie. My dear, sweet, beautiful little cousin. I think of the times when we were young...sleep overs, playing house, swimming at Grandma & Grandpa's..Growing Up. I think about your wedding when you married your best friend Christopher, and what a breathtakingly beautiful bride you were. And your wedding shower, especially when you opened the last gift of the day from your Dad, a white baseball hat with a veil attached, for his star softball player...probably the best gift of the day. And now here you are, you and Christopher, with the best gift of all...LIAM...Liam represents Life and Hope and Inspiration, and most of all, LOVE. You have brought a very special little boy into this world. And for God to pick you and Christopher as his parents is an honor, and such a blessing that words can never describe. Since Liam has been here, he has done so many things for so many people! He is restoring lives! Restoring Love and Hope! And most importantly, he is restoring everyone's faith in God. God is holding your sweet boy every day. Angels never leave his side. We don't know why these things happen, but I can tell you for sure that Liam has already done so much...he has brought our family closer together in a way we could never imagine...And he has brought all of us closer to the Lord. Don't ever forget the beautiful "Footprints"...when a man had a dream of walking faithfully with the Lord in the sand during many events of his life day after day, and he noticed that at the saddest and lowest times of his life there was only one set of footprints..he questioned the Lord and said "during the troublesome times of my life, there was only one set of footprints, why would you leave me when I needed you the most"...the Lord replied "My precious, precious child, I love you and would never leave you. During your times of trial and suffering when you see only one set of footprints, it was then that I carried you." God hears you, He counts every tear and He cries with you...He will never leave you. I was SO happy to see you and so happy to see Liam. He has touched my life forever. You and Christopher are the best and I can't wait to see Liam come home and be the man God intends him to be. Patience...FAITH...and Love....SO MUCH LOVE. Proud to be your cousin. Love, Rochelle. xoxoxo

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  11. you are the best cousin i've EVER! i love you guys soooooooooooooooooooooooooooooo much and you guys are in my prayers!!!!




    love always,alyssa!

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  12. I just started following your family and story, first off let me say how amazing and strong i think you and your family is. I think everyones biggest fear when they find out they are pregnant is that something would be wrong, i couldnt imagine. Your son has proved to the world that he isnt going to stop fighting. I pray that you get to take your beautiful son home soon and just know that the world is behind you and your family. your story of strength and faith is inspriring. Praying for you all and please if there is anything you need feel free to reach out! Even if you just need someone to vent to. Thoughts and prayers sent your way :)

    STAY STRONG BABY LIAM <3

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  13. Thinking of you and sending prayers your way.....

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