Liam was born with a very rare congenital heart defect. His prognosis was poor but we chose to fight for him. He was born Aug 27th and he fought hard until his very last breath. We were blessed to have him for 78 wonderful, amazing days. All the Tears, all the heartache was worth it, it still continues to be worth it. I met my hero the day he was born. When Chris and I made that decision to go forth with the pregnancy and delivery that amazing little boy, I learned and experienced more then anyone should in their lifetime. But I never realized how many parents go through the same thing. Until you see it with your own eyes, or others reach out to you and give their own experiences. You never hear much about Congenital Heart Defects while growing up until it becomes your life, your child's life. Now I want to learn, I want to have the knowledge. I want to help bring awareness.
February is Heart Awareness Month, and Feb 7th thru Feb 14 is Congenital Heart Awareness Week. Each year 1,000,000 babies are born with a heart defect worldwide, 100,000 of them will not survive till their first birthdays. I never thought this would happen in my life, but it has, and I am here now to help spread the word.
This month when you wear red remember those children that are fighting for their lives, or those that have their angel wings.
Thank you for supporting us and continuing to do so. Faith, Family, and Friends is what helps us conquer each day. I read this recently and I instantly fell in love with it.... Courage is fear, with prayers.
Lets do something fun, for all of you who have superhero bracelets or superhero journey t-shirts lets wear them proudly throughout the month. For those of you who do not, wear something that is red. Not only for Liam but for so many other families needing prayers and strength to get through this journey called life.
Xoxo
I will wear mine PROUDLY!!! Miss you all!! You are still in my thoughts and prayers...
ReplyDelete~Steph (Guest Service Specialist)
Liam continues to be in my daily thoughts.......madly in love with those eyes! Praying you continue to find comfort and grace in this journey. From South Carolina with love! Susan
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